Hi! I’m so glad you’re here!
I’m Marie Heron, and I’ve created this Facebook community around my PODCAST: Truth Be Told. (@TruthBeToldMS). A unique and exciting channel for newly diagnosed MS patients who are struggling to find their place, and see their future, post-diagnosis.
Being diagnosed in 1984 at the age of 24, I can assure you that as scary as my diagnosis was – finding the answers to my most pressing questions was scarier! The lack of information for newly-diagnosed young people was abysmal and MS support groups were NOT for me. I just didn’t have anything to compare myself to. What would my LIFE be like?
That’s why I’ve created this inspiring, hopeful and uplifting podcast for friends, family and young people living with MS.
Now 35 years later, I can look back and say I DID have a life. A GREAT life! If someone could have told me that I would have children, meet the love of my life at 40, visit 10 countries, become an educator, start my own business and win awards, I may not have believed them at the time but it would have given me the hope I needed in those earliest years with this disease.
In 2016, at a clinic in downtown Toronto, I met a 24-year-old woman who had recently been diagnosed with MS. When I heard this, I shared the story of my own diagnosis. The young woman asked me, “What has your life been like?”. When I recapped the previous 32 years, the young woman turned to her mother and said, “I want her life!”. I laughed and answered, “If I met someone like me when I was first diagnosed, it would have saved me a lot of heartache and given me hope.”
What I plan on sharing here is all of the truth, the reality, the heartache, as well as the possibilities and innovation around MS so that newly diagnosed young patients can learn the facts and find their OWN path on this new chapter of their lives. We’ll discuss everything from careers, relationships, fitness, medicine, politics, and share tools for our listeners and their loved ones to manage their prognosis.
That’s why I’ve decided to use my good fortune to start this podcast called @TruthBeToldMS - so that young people living with MS can find a safe resource for hope, inspiration and advocacy.
I hope you follow, enjoy and tune in regularly!